There hasn’t been much to report lately as I’ve been waiting to start the intense week of medical testing and reviews of my mental, financial, and social health that will help determine if and how I should be ranked for lung allocation. I’ve already had a few tests, but the majority will start on February 19th and run through February 23rd.
My biggest job now is working out the logistics of how to navigate that week – including where to stay and figuring our who will be available to accompany me to the many appointments. Staying overnight in Decatur will be the most sensible thing for many of the days that week.
As far as my health goes, I continue to deteriorate every week. I’m still capable of taking care of myself around the house and haven’t needed help much in that regard. Staying active is job one for me right now, so taking care of domestic chores, no matter how challenging, is good for both body and mind.
I have had lots of help from friends running to the grocery store and other errands and I’ve had some visitors here and there including an amazing visit from Pylon Reenactment Society – they brought me a demo release of their new album “Magnet Factory”! I can’t begin to express how much I’ve appreciated all the support and well wishes from so many friends. It’s touching beyond words.
So, I don’t think I’ll have much to report until after the February Emory appointments, but as they say, no news is good news. Much love to all!